ALS: Cognitive and Behavioral Changes with Dr. Stan AppelDr. Stan Appel, Director MDA/ALS Center at Methodist Neurological Institute in Houston, speaks about cognitive and behavioral changes in patients with ALS, amyotrophic lateral sclerosis or Lou Gehrig's disease.
Emory Conducting Landmark Study to Treat ALSDr. Jonathan D. Glass on a new clinical trial for a treatment of ALS (amyotrophic lateral sclerosis or Lou Gehrig's Disease) to be conducted at Emory University. The initial trial is a safety test and involves injects therapeutic stem cells into the spinal cord. If the initial trial shows treatment in safe, a Phase II trial will be conducted to test the therapeutic values of the treatment, i.e. does it work?
About ALS
Commonly called Lou Gehrig's disease for the popular New York Yankees baseball player who died of it in 1941, ALS is a devastating disease that kills the motor neuron cells in the brain and spinal cord, causing the brain to lose ability to control muscles in the body. It inevitably leads to paralysis and problems with swallowing, eating, and breathing. The persons mental capacity remains intact, making the disease a cruel sentence for patients who are often otherwise healthy and active before being diagnosed.
The Emory ALS Center
The Emory ALS Center is designed and dedicated to providing comprehensive care for people and families with ALS and related motor neuron diseases. Emory is recognized nationally as an ALS referral center by both the Muscular Dystrophy Association (MDA) and the ALS Association. Since1997, the Emory ALS Center has grown to be one of the premier centers for ALS care in the United States. In addition, Emory has been selected by the MDA as one of five national centers as part of a Clinical Research Network to speed and support ALS research.
Related Links
Video: ALS Patient Stories
http://whsc.emory.edu/home/multimedia/videos/als-borrowed-time.html
On borrowed time
http://whsc.emory.edu/home/publications/health-sciences/emory-health/fall09/on-borrowed-time.html
Emory ALS Center
http://www.neurology.emory.edu/ALS/
The Latest on ALS Research - Dr. Lucie Bruijn - October 2, 2012Dr. Lucie Bruijn, Chief Scientist for The ALS Association helps us understand the importance of the recent research breakthroughs and what they will hopefully mean for future therapies and better diagnosis.
ALS - Lou Gehrig's diseaseA short documentary about Mike Winston, who is living with Lou Gehrig's disease.More about Mike Winston,click the link and then click SKIP AD. http://adf.ly/eLy7G
ALS Research and What's To Come, from the ALS Symposium at Mayo Clinic in FloridaRead the blog post for more info: http://mayocl.in/Ss8s9G
Attendees of the ALS Symposium that took place on January 17, 2013 at Mayo Clinic in Florida discuss the latest in ALS research and the importance of this event.
In this video are: (in order of appearance)
Tania Gendron, Ph.D., Assistant Professor, Department of Neuroscience, Mayo Clinic in Florida**
Rosa Rademakers, Ph.D., Associate Professor, Department of Neuroscience, Mayo Clinic in Florida
Lucie Bruijn, Ph.D., Chief Scientist, The ALS Association
Jacob Ayers, Ph.D., Postdoctoral Associate, Neuroscience and Center for Translational Research in Neurodegenerative Disease (CTRND), University of Florida**
**Tania is a past and Jacob is a current recipient of the ALS Association's Milton Safenowitz Post-Doctoral Fellowship for ALS Research.
More about Dr. Rademakers research: http://youtu.be/TRb7Csvt-_8
Scientists discover new genetic mutation for ALSFrom London Ontario -- Scientists have identified a new genetic mutation for amyotrophic lateral sclerosis (ALS), according to a report published in Amyotrophic Lateral Sclerosis and Frontotemporal Degeneratio. Researchers studied both familial and sporadic cases of the ALS, a debilitating neurological disease characterized by muscle atrophy, difficultly walking, swallowing and breathing and weakness. Researchers found mutations in the ARHGEF28 gene that were present in almost all cases of the disease. These results could potentially lead to new targeted therapies.
We spoke with Dr. Michael Strong, principal investigator of this study, who offered some further insight
Mayo Clinic Researchers Find Gene That Is Common Cause of ALS and Frontotemporal DementiaNorth American investigators led by Dr. Rosa Rademakers, Ph.D. and other neuroscientists at Mayo Clinic in Florida have found a genetic abnormality they say is the most common cause of two different but related forms of neurodegenerative disease — frontotemporal dementia (FTD) and amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease.
Mayo Clinic Doctors with Answers to Frequently Asked Questions from ALS PatientsDr. Eric Sorenson and Dr. Brian Crum, Mayo Clinic neurologists, provide answers to some of the most frequent questions they get about ALS or Lou Gehrig's Disease.
ALS BreakthroughDoctors have made a breakthrough in identifying the cause of Lou Gehrig's Disease.
Lou Gehrig's Disease (ALS): Progress and Promise in Stem Cell ResearchCIRM has funded the ALS Disease Team led by scientists at UC San Diego, The Salk Institute, and Life Technologies Corporation who aim to bring a human embryonic stem cell based ALS therapy to clinical trials within four years. Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's Disease, is a progressive motor neuron disorder. Most people with ALS die within 3 to 5 years from the onset of symptoms. For more information visit CIRM's ALS disease fact sheet (www.cirm.ca.gov/ALS_facts) and The ALS Association website (www.alsa.org)
Diagnosing ALSAmyotrophic Lateral Sclerosis, or ALS, is commonly called Lou Gehrig's disease. Known more for the people who have it, than its clinical presentation. ALS is an incurable, progressive neurological disorder.
"What people end up with is a degeneration of the nerves that go through the skeletal muscles. As a result of that, there is atrophy of the muscles," says Dr. Nima Mowzoon, neurologist on Lee Memorial Health System's medical staff.
For reasons we don't know, nerve cells of the brain and spinal cord that control muscle movement deteriorate, leading to paralysis and death. People generally start noticing symptoms in their 50s or 60s.
"It usually starts out as a painless weakness. That weakness is usually present for a period of time before patients come to the doctors," says Dr. Mowzoon.
Early stage symptoms include: weakness in one limb, clumsiness of the hands, impaired speech and difficulty walking.
"A patient may have a foot drop or hand weakness. It starts in a limb and progresses to the contiguous limb. So it can go to the leg on the same side or it can go to the opposite arm for instance - that sort of thing," says Dr. Mowzoon.
Getting a definitive diagnosis is made through a series of tests and evaluations, in part by ruling other things out. Part of the criteria includes monitoring the progression.
"Diagnosis is a combination of a clinical presentation and a use of EMG, electromyography, which is nerve and muscle testing. To diagnose somebody you would need to have three different segments involved," says Dr. Mowzoon.
Without a cure, patients utilize therapy to compensate for their lost abilities. Fort Myers is home to one of a handful of ALS clinics in the state.
"The clinic brings together all the ancillary services that the patient needs. There's physical therapy, occupation therapy, speech therapy, a dietician will get to see them. Bottom line is the clinic helps people live a good quality of life," says Dr. Mowzoon.
And once again, the focus of ALS is on the people who have it.
View More Health Matters video segments at leememorial.org/healthmatters/
Lee Memorial Health System in Fort Myers, FL is the largest network of medical care facilities in Southwest Florida and is highly respected for its expertise, innovation and quality of care. For nearly a century, we've been providing our community with everything from primary care treatment to highly specialized care services and robotic assisted surgeries.
Visit leememorial.org
The Path for a CureThis video was made to raise awareness of amyotrophic lateral sclerosis (ALS). Nicole from Boston, shares her story about her battle with ALS and her strong desire to help others with the disease in the future. Mass General's ALS Multidisciplinary Clinic provides the latest treatments and research opportunities for people with Amyotrophic Lateral Sclerosis.
This film has been entered into the 2014 Neuro Film Festival from the American Brain Foundation at www.NeuroFilmFestival.com. Help us pave the way to finding a cure for brain disease.
Is there a Cure for Amyotrophic Lateral Sclerosis Videois-there-a-cure-for-amyotrophic-lateral-sclerosis-with-adam-heller-md
SMH MDA/ALS Comprehensive Care Clinic Helps ALS Patients Live Longer, EasierSarasota Memorial's Center for Neuromuscular Disorders, a MDA/ALS Comprehensive Care Clinic, offers the latest treatments and strategies to manage the symptoms of ALS, help people maintain as much independence as possible and prolong survival. In this educational video, SMH Neurologist and Clinic Director Gregory Hanes, MD, and one of his patients explain how the multi-disciplinary approach optimizes care and can increase life expectancy and quality of life for people with ALS who enroll early in the program. The clinics combine the expertise of multiple specialties, including a neurologist, pulmonologist, respiratory therapist, physical and occupational therapists, nutritionist and mental/behavioral health specialist. For more information, call the clinic at: (941) 917-4156 or visit smh.com.
Overview of Amyotrophic Lateral SclerosisDr. Leo McCluskey provides an overview of Amyotrophic Lateral Sclerosis at the February 2012 FTD Caregiver Conference, University of Pennsylvania, Philadelphia, PA
ALS (Amyotrophic Lateral Sclerosis ) Prognosis: Phase Angle a Prognostic Factor for survivalAmyotrophic lateral sclerosis (ALS), often called as "Lou Gehrig's Disease," is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. It is a form of motor neuron disease.
What causes Amyotrophic Lateral Sclerosis (ALS)?Clinical trials allow physicians and researchers to learn what works and what doesn't work in medicine. Alan Sanderson, MD a neurologist Ohio State's Wexner Medical Center, highlights the importance of clinical trials and how the results could eventually lead to new discoveries to treat neuromuscular diseases like ALS, or Lou Gehrig's Disease.
Neurology: Diagnosing and Managing Amyotrophic Lateral Sclerosis (ALS)Dr. Adam Heller, M.D. of Lee Memorial Health System discusses the diagnosis and management of Amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's Disease.
Medical Moment: ALS (Amyotrophic Lateral Sclerosis or Lou Gehrig's Disease)Dr. Randall Trudell, Neurologist, discusses the symptoms, diagnosis and treatments available for Amyotrophic Lateral Sclerosis, also known as ALS or Lou Gehrig's Disease.
For more information about ALS or the Cole Neuroscience Center, visit our website at www.utmedicalcenter.org or call the Healthcare Coordination office at 865-305-6970
SECOND OPINION | Amyotrophic Lateral Sclerosis (ALS) | APT | Full EpisodeAmyotrophic lateral sclerosis (ALS) is a devastating, progressive neurological disease with no cure. Also known as Lou Gehrig's disease, ALS physically and mentally affects each person differently. In this heartfelt episode, experts present data and Gary Temoyan shares his story, talking about his diagnosis, treatments, progression, and symptom management, which is maximizing his quality of life for as long as possible.
This APT medical series explores illnesses one at a time and features a panel of physicians and other experts assessing individual cases. Visit http://www.SecondOpinion-TV.org
Sponsored by Blue Cross Blue Shield Association
ALS: How to Treat & Help Amyotrophic Lateral Sclerosis with Dr. David SteenblockAre you frustrated by conventional medicine telling you there is nothing you can do to help treat ALS? Look no further as Dr. David Steenblock discusses how to help & treat Amyotrophic Lateral Sclerosis (ALS). To learn more about how Dr. Steenblock can help you, call or email us today! Call: 800-300-1063 Email: dasdoinc@gmail.com
My Experience of Having ALS - Stephen HawkingAn inspiring message from Prof. Stephen W. Hawking's website http://www.hawking.org.uk
Stephen Hawking's Ecperience with ALS ( Amyotrophic Lateral Sclerosis).
A video dedicated to Professor Stephen W. Hawkins
ALS (Lou Gehrig's Disease) - Health Matters(Visit: http://www.uctv.tv) Dr. David Granet welcomes Dr. Geoffrey Sheean, UC San Diego neurologist, to explore ALS - amyotrophic lateral sclerosis (also known as Lou Gehrig's Disease) - and ways patients can manage the symptoms to help maintain as much independence as possible and prolong survival.
Series: "Health Matters" [9/2012] [Health and Medicine] [Show ID: 23547]
My Life With ALSMy Life With ALS Rogers TV Interview! My mom was diagnosed January 19th 2006 and passed away January 29th 2010.
ALS, sometimes called Lou Gehrig's disease or motor neuron disease, is a rapidly progressive fatal neuromuscular disease. It is characterized by degeneration of a select group of nerve cells and pathways in the brain and spinal cord, which lead to progressive paralysis of the muscles.
ALS can strike anyone. ALS is not contagious, does not discriminate, and can strike at any age. ALS most often occurs between the ages of 40 and 70, but it can also occur in older and younger adults, and rarely in teenagers (Mitsumoto and Munsat, 2001). ALS is usually fatal within two to five years of diagnosis. There is a hereditary pattern in about 5 -- 10 per cent of cases.
Amyotrophic Lateral Sclerosissci res
Living With ALSThe inspiring story of an Army Veteran who is living life to its fullest, even though she must do so with a debilitating disease Amyotrophic Lateral Sclerosis (ALS) better known as Lou Gehrigs Disease.
To download a copy of this segment from The American Veteran program, please visit this link: http://www1.va.gov/opa/feature/amervet/index.asp
